Diagnosis Update: Plot Twist

For the first time in the year and a half since I first got "sick," I finally feel like I am making some progress to my diagnosis. Last week I was able to see an orthopedist in my area with years of experience treating individuals with connective tissue differences such as Ehlers Danlos syndrome (which... Continue Reading →

Unknown unknowns

Hey all. Thanks for finding this blog in a sea of links and millions of other distractions. Your attention and time are meaningful. I have been wanting to launch a blog for a while, but only was going to do it if I thought I could write about something that could impact change or comfort... Continue Reading →

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